Monday, October 16, 2006
Gel for MS memory loss?
I could definitely use some of this the side effect might be hairy palms.I could always use more hair on my head and remember the short term stuff.
Saturday, October 14, 2006
Bringing an archive to the beta
10/12/2006...I get in around in an electric wheelchair i still loved southpark with timmy.I couldn't resist this image since
I'm a huge X-men fan!
9/21/2006
...finally kicked in.Going into a new world
8/14/2006
New Format It keeps the mind going!Somedays aren't so great but I always try to keep myself upbeat!
7/08/2006 REBIF NO MORE
It was causing problems with my seratonin and decreasing my dopamine levels.My neurologist had this
checked and did a temporary switch to Copaxone before going on Tysabri. New FDA recommendation on
switching to Tysabri is to allow your bloodcount to eliminate interferon.In other words,the PML deaths were
caused by dual therapies.
6/06/2006 Still hanging out
and I'll see my neurologist tomorrow.I've gone through the ringer with injectables and chemotherapy.I'd
thought add my space in for good things I've always liked.
3/17/2006 Still going
I hope that there still may be some type of cure someday for MS. The week of March 13-17 is MS awareness week.
December 8,2005
I just keep going like the Energizer bunny.I was having too many problems with my cognitive and my
coordination is really out of kilter.Bottom line is that I had to quit work and I am currently on my COBRA
.I'm not able to drive anymore so work is too exhausting with the vertigo running at a 9 to 10.I had a visit with
my neurologist and an MRI on that day. The MRI was done with a contrast which means I was injected with
Iodine. This process checks if there is a progression with the MS plaques.Well, a week later I received a call
from my neurologist and he had bad news for me.The last Novantrone treatment was similar to the story of the
Dutch boy who kept his finger in the dam from keeping it from flooding the village.The MS is active again and
my prayer is that Jesus would deliver me from this and I don't have to deal with any further complications.The
neurologist was honest and said there is nothing that can be done.I still have the same problems except with
intensity.I still work full time and I know I am prone to other complications.This may be my last post.God
bless you all and be vigilant in the coming years!
8/20/2005 NO MORE NOVANTRONE NEEDED My last session is finally
over and maybe it contributed to the NO NEW LESIONS blog. Generally speaking the 'smurf juice' shows
to be more of a significant proven drug for RRMS not PPMS. My exacerbations are a continual progression
with the continuous vertigo,ears ringing,visual disturbances (ex. blurred ,jittery vision so looking in a
mirror is something else,horizontal ghost bar effect!
6/08/2005 No new Lesions!!! MRI results came in finally, it's been a while. Praise the Lord,NO NEW LESIONS!This is good news and I
switched to REBIF because the Avonex was wiping me outIt is good to be back in the swing!
4/27/2005 Richard Pryor thankful for MS 4/23/2005 http://www.the-leaky-cauldron.org/MTarchives/006908.html
England's author is a good voice and supporter in the UK
.Her Mother dealt with this disease before any of the drugs were introduced.I like to see shining examples
of celebrity help raise a voice to defeat this disease.As I would put it,"She's the modern Lady of the Lake
who hands Excalibur to Arthur to bring order to England". In modern terms, aiding research with funds using
the famous pen.
4/20/2005 Canada approves cannabis-derived Sativex for multiple sclerosis patients
Canada approves cannabis-derived Sativex for multiple sclerosis patients Canada Dry? Heh,heh...
Let's just see.Reminds me of a Cheech & Chong skit."We don't have a drug problem,it's always around."
It may provide relief but the carcinogenic side effect may break down more myelin.What do you think?
4/20/2005 Study links cigarette smoking with progression of multiple sclerosis
4/17/2005 Print this News - Medindia.net
4/15/2005 The National Organization on Disability - Housing Access
The National
Organization on Disability - Housing Access One of the biggest problems this nation faces yet it doesn't
recognize.Senior citizens can go into a retirement or nursing home but when it comes to a younger disabled
person there is no place to go. Someone needs to put up a center or assisted living housing apartment
complex for the younger handicapped individuals. Here in Tulsa are a few candidate spots for such a center.
For example,the former Camelot Hotel located near 51st street and Peoria which is also near a highway I-44.
4/11/2005 WLTX.com News
WLTX.com News
Let's keep up the fight against MS.There is never to keep the positive hope alive for a cure.
4/11/2005 A Positive Attitude The most Important thing in fighting MS is a positive attitude.
3/19/2005 Tremors
...drive me nuts!
3/18/2005 WIStv.com Columbia, SC: FDA asks for stronger warning label for multiple sclerosis drug
WIStv.com Columbia, SC: FDA asks for
stronger warning label for multiple sclerosis drug The label instructions I get with this medication
already mention this precaution. If they made a drug for PPMS,who knows what warning would it give
for me? If it stated bad breath or hairy palms I could deal with it.
3/18/2005 ABC ?
I used to be on the ABC's of therapy which was the typical Amatandine,Bac
lofen, & Copaxone. Two more treatments of novantrone therapy are left, Avonex,Baclofen, & Provigil are in
my regimen currently.Next time I see the neurologist he'll probably put me on Ribif but stay with the same pills.
After the recent FDA pull of Tysabri, I heard in my last MS group meeting it may not make any difference for me. All of the conventional therapies really don't make a significant impact.I'll have to admit the Provigil helps the fatigue problem.I hope and pray that a cure will come sometime soon.I'll still keep my chin upThe one good thing technology has done for me is an electric scooter and a lift chair. The day after giving myself an Avonex shot I am really wiped out. People with MS know the after effects of this shot. These electric devices do help and if I need immediate assistance my cellphone is always within reach.Tremors are common when the disease becomes progressive. I compare it to the earthquakes. They can be mild and pick up in intensity when you are just about to go to sleep. Factor in with constantly ringing ears and vertigo it becomes a colossal when your legs start twitching. My prayer is for total calm for even one minute. They say everyone has a guardian angel so if that's the case mine must be working overtime.
It is a problem because a younger person doesn't fit into a nursing home or retirement center.I would like someone to take up on this opportunity whether it is done by private funds or government assisted.
Study links cigarette smoking with progression of multiple sclerosisNewsInteresting topic, of course quit smoking cigarettes 5 years ago and Canadian MS patients get to puff a joint?
http://www.contactmusic.com/new/xmlfeed.nsf/mndwebpages/pryor%20thankful%20for%20multiple%20sclerosis Yes, Richard Pryor said this! Of course, he was addicted to cocaine and in this article he stated it straightened out his life.As for myself, it has given me more direction in life and no longer do I stray from what God has in mind for me.I'll have to admit i can agree with one of the greatest comedians of all time. He had a pretty checkered past but remains very optimistic.I hope you feel optimistic as well despite the debilitating effects.
Interesting isn't it ? And I still work full time, go to church on sunday and meet with my MS group. I do not call this luck but the grace of God that I can still can do these things. A direct quote from Phillipians 4:13 " I can do all things thru Christ which strengthens me".
I'm a huge X-men fan!
9/21/2006
...finally kicked in.Going into a new world
8/14/2006
New Format It keeps the mind going!Somedays aren't so great but I always try to keep myself upbeat!
7/08/2006 REBIF NO MORE
It was causing problems with my seratonin and decreasing my dopamine levels.My neurologist had this
checked and did a temporary switch to Copaxone before going on Tysabri. New FDA recommendation on
switching to Tysabri is to allow your bloodcount to eliminate interferon.In other words,the PML deaths were
caused by dual therapies.
6/06/2006 Still hanging out
and I'll see my neurologist tomorrow.I've gone through the ringer with injectables and chemotherapy.I'd
thought add my space in for good things I've always liked.
3/17/2006 Still going
I hope that there still may be some type of cure someday for MS. The week of March 13-17 is MS awareness week.
December 8,2005
I just keep going like the Energizer bunny.I was having too many problems with my cognitive and my
coordination is really out of kilter.Bottom line is that I had to quit work and I am currently on my COBRA
.I'm not able to drive anymore so work is too exhausting with the vertigo running at a 9 to 10.I had a visit with
my neurologist and an MRI on that day. The MRI was done with a contrast which means I was injected with
Iodine. This process checks if there is a progression with the MS plaques.Well, a week later I received a call
from my neurologist and he had bad news for me.The last Novantrone treatment was similar to the story of the
Dutch boy who kept his finger in the dam from keeping it from flooding the village.The MS is active again and
my prayer is that Jesus would deliver me from this and I don't have to deal with any further complications.The
neurologist was honest and said there is nothing that can be done.I still have the same problems except with
intensity.I still work full time and I know I am prone to other complications.This may be my last post.God
bless you all and be vigilant in the coming years!
8/20/2005 NO MORE NOVANTRONE NEEDED My last session is finally
over and maybe it contributed to the NO NEW LESIONS blog. Generally speaking the 'smurf juice' shows
to be more of a significant proven drug for RRMS not PPMS. My exacerbations are a continual progression
with the continuous vertigo,ears ringing,visual disturbances (ex. blurred ,jittery vision so looking in a
mirror is something else,horizontal ghost bar effect!
6/08/2005 No new Lesions!!! MRI results came in finally, it's been a while. Praise the Lord,NO NEW LESIONS!This is good news and I
switched to REBIF because the Avonex was wiping me outIt is good to be back in the swing!
4/27/2005 Richard Pryor thankful for MS 4/23/2005 http://www.the-leaky-cauldron.org/MTarchives/006908.html
England's author is a good voice and supporter in the UK
.Her Mother dealt with this disease before any of the drugs were introduced.I like to see shining examples
of celebrity help raise a voice to defeat this disease.As I would put it,"She's the modern Lady of the Lake
who hands Excalibur to Arthur to bring order to England". In modern terms, aiding research with funds using
the famous pen.
4/20/2005 Canada approves cannabis-derived Sativex for multiple sclerosis patients
Canada approves cannabis-derived Sativex for multiple sclerosis patients Canada Dry? Heh,heh...
Let's just see.Reminds me of a Cheech & Chong skit."We don't have a drug problem,it's always around."
It may provide relief but the carcinogenic side effect may break down more myelin.What do you think?
4/20/2005 Study links cigarette smoking with progression of multiple sclerosis
4/17/2005 Print this News - Medindia.net
4/15/2005 The National Organization on Disability - Housing Access
The National
Organization on Disability - Housing Access One of the biggest problems this nation faces yet it doesn't
recognize.Senior citizens can go into a retirement or nursing home but when it comes to a younger disabled
person there is no place to go. Someone needs to put up a center or assisted living housing apartment
complex for the younger handicapped individuals. Here in Tulsa are a few candidate spots for such a center.
For example,the former Camelot Hotel located near 51st street and Peoria which is also near a highway I-44.
4/11/2005 WLTX.com News
WLTX.com News
Let's keep up the fight against MS.There is never to keep the positive hope alive for a cure.
4/11/2005 A Positive Attitude The most Important thing in fighting MS is a positive attitude.
3/19/2005 Tremors
...drive me nuts!3/18/2005 WIStv.com Columbia, SC: FDA asks for stronger warning label for multiple sclerosis drug
WIStv.com Columbia, SC: FDA asks for
stronger warning label for multiple sclerosis drug The label instructions I get with this medication
already mention this precaution. If they made a drug for PPMS,who knows what warning would it give
for me? If it stated bad breath or hairy palms I could deal with it.
3/18/2005 ABC ?
I used to be on the ABC's of therapy which was the typical Amatandine,Bac
lofen, & Copaxone. Two more treatments of novantrone therapy are left, Avonex,Baclofen, & Provigil are in
my regimen currently.Next time I see the neurologist he'll probably put me on Ribif but stay with the same pills.
After the recent FDA pull of Tysabri, I heard in my last MS group meeting it may not make any difference for me. All of the conventional therapies really don't make a significant impact.I'll have to admit the Provigil helps the fatigue problem.I hope and pray that a cure will come sometime soon.I'll still keep my chin upThe one good thing technology has done for me is an electric scooter and a lift chair. The day after giving myself an Avonex shot I am really wiped out. People with MS know the after effects of this shot. These electric devices do help and if I need immediate assistance my cellphone is always within reach.Tremors are common when the disease becomes progressive. I compare it to the earthquakes. They can be mild and pick up in intensity when you are just about to go to sleep. Factor in with constantly ringing ears and vertigo it becomes a colossal when your legs start twitching. My prayer is for total calm for even one minute. They say everyone has a guardian angel so if that's the case mine must be working overtime.
It is a problem because a younger person doesn't fit into a nursing home or retirement center.I would like someone to take up on this opportunity whether it is done by private funds or government assisted.
Study links cigarette smoking with progression of multiple sclerosisNewsInteresting topic, of course quit smoking cigarettes 5 years ago and Canadian MS patients get to puff a joint?
http://www.contactmusic.com/new/xmlfeed.nsf/mndwebpages/pryor%20thankful%20for%20multiple%20sclerosis Yes, Richard Pryor said this! Of course, he was addicted to cocaine and in this article he stated it straightened out his life.As for myself, it has given me more direction in life and no longer do I stray from what God has in mind for me.I'll have to admit i can agree with one of the greatest comedians of all time. He had a pretty checkered past but remains very optimistic.I hope you feel optimistic as well despite the debilitating effects.
Interesting isn't it ? And I still work full time, go to church on sunday and meet with my MS group. I do not call this luck but the grace of God that I can still can do these things. A direct quote from Phillipians 4:13 " I can do all things thru Christ which strengthens me".
Subscribe to:
Posts (Atom)
